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1. About NHS Highland and our key relationships

Highland Health Board, commonly known as NHS Highland, is a public organisation (a Scottish Health Board) created in Scotland under section 2 of the National Health Service (Scotland) Act 1978 (the 1978 Act). It is one of the organisations which form part of NHS Scotland (NHSS).

As NHS Highland is just one part of the integrated health and social care system in Scotland, you should read this privacy notice in conjunction with those provided by your GP or other primary care provider (such as your NHS dentist, optometrist or pharmacist) and the information provided nationally on the NHS Inform website, the Public Health Scotland website, the NHS National Services Scotland website, and the website of NHS Education for Scotland.

We work in close partnership with our colleagues in The Highland Council and Argyll and Bute Council around the delivery of health and social care, further to the provisions of the Public Bodies (Joint Working) (Scotland) Act 2014.

Our headquarters are:

NHS Highland
Assynt House
Beechwood Park
Inverness
IV2 3BW

Our main switchboard number is: 01463 704000

NHS Highland is registered with Information Commissioner’s Office, our registration number is Z5634253

2. About the personal information we use

We use personal information on different groups of individuals including:

  • patients and their legal representatives, guardians or close family members or associates such as their Next of Kin
  • staff, volunteers, students and applicants
  • contractors
  • suppliers
  • complainants, enquirers
  • survey respondents or research participants
  • professional experts and consultants
  • individuals captured by CCTV

The personal information we use (personal data) includes information that identifies you like your name, address, date of birth, postcode or Community Health Index (CHI) number. Your CHI number is a unique identifier used across the healthcare system in Scotland.

We also use more sensitive types of personal information (special categories of personal data), including information about racial or ethnic origin; political opinions; religious or philosophical beliefs; trade union membership; genetic and biometric data, health; sex life or sexual orientation.

The information we use can relate to personal and family details; education, training and employment details; financial details; lifestyle and social circumstances; goods and services; visual images; details held in the patient record; responses to surveys etc.

3. Our purposes for using personal information

Under the 1978 Act NHS Highland has a statutory responsibility to provide or arrange for the provision of a range of healthcare, health improvement and health protection services. We are given these tasks so that we can help to promote the improvement of the physical and mental health of the people of the Highlands and Argyll and Bute and assist in operating a comprehensive and integrated national health service in Scotland.

We use personal information:

  • to enable us to provide healthcare services for patients (including reminding you of appointments)
  • to undertake data matching under the national fraud initiative and for fraud prevention
  • when supporting and managing our employees
  • to maintain our accounts and records
  • in partnership with local authorities for the purposes of health and social care management and delivery
  • to facilitate fundamental medical research
  • for the analysis needed to manage the health and social care system
  • to share data into appropriate health care registries such as those maintained by Public Health Scotland
  • for the prevention and detection of crime, including the use of CCTV systems

4. Our legal basis for using personal information

NHS Highland, as data controller, is required to have a legal basis when using personal information. NHS Highland normally considers that performance of our tasks and functions are in the public interest and further to our official authority under the 1978 Act. So, when using personal information our legal basis is usually that its use is necessary for the performance of a task carried out in the public interest, or in the exercise of official authority vested in us. In some situations, we may rely on a different legal basis; for example, when we disclose personal information to comply with a legal request (e.g. a court order), our legal basis is that its use is necessary to comply with the legal obligation. Another example would be for compliance with a legal obligation to which NHS Highland is subject. For example, we have a duty under the Public Health etc (Scotland) Act 2008 to notify Health Protection Scotland when someone contracts a specific disease.

When we are using more sensitive types of personal information (special categories of personal data), including health information, our legal basis is usually that the use is necessary:

  • for the provision of health or social care or treatment or the management of health or social care systems and services
  • or for reasons of public interest in the area of public health
  • or for reasons of substantial public interest for aims that are proportionate and respect people's rights
  • or for archiving purposes, scientific or historical research purposes or statistical purposes, subject to appropriate safeguards
  • or in order to protect the vital interests of an individual
  • or for the establishment, exercise, or defence of legal claims or in the case of a court order

On rare occasions we may rely on your explicit consent as our legal basis for using your personal information. When we do this, we will explain what it means, and the rights that are available, to you.

Please note: we may also ask for your consent for us to perform specific healthcare procedures or operations, or when you take part in drug trial. This is known as clinical or ethical consent. It demonstrates that you have agreed to receive a particular type of care or to participate in an activity. In these circumstances we will not normally be relying on your clinical consent as the lawful basis for our processing of your personal data. Where you have provided consent for the processing of your personal information, we will make it clear to you that you have the right to withdraw that data processing consent at any point.

5. Who provides the personal information

When you do not provide information directly to us, we receive it from other individuals and organisations involved in the delivery of health and social care services in Scotland. These include other NHS Boards and primary care contractors such as GPs, dentists, pharmacists and opticians; other public bodies e.g. Local Authorities, such as The Highland Council and Argyll and Bute Council; and suppliers of goods and services.

6. Sharing personal information with others

Depending on the situation, where necessary we will share appropriate, relevant and proportionate personal information in compliance with the law, with the following:

  • our patients and their chosen representatives or carers
  • staff
  • current, past and potential employers
  • healthcare social and welfare organisations
  • suppliers, service providers, legal representatives
  • auditors and audit bodies
  • educators and examining bodies
  • research organisations
  • people making an enquiry or complaint
  • financial organisations
  • professional bodies
  • Trades Unions
  • business associates
  • police forces
  • security organisations
  • central and local government
  • voluntary and charitable organisations

Where the Board shares information with other organisations it will normally do so further to the provisions of an Information Sharing Agreement. Where the Board appoints another organisation or supplier to act on its behalf, that organisation or supplier will be subject to the provisions of a data processing agreement.

Please note that the agreements for many of the systems and services used by NHS Highland are negotiated by national Boards, such as NHS National Services Scotland or NHS National Education Scotland, on behalf of all Scottish Health Boards.

Where information requires to be shared in extremis, for example for the preservation of life or in a major emergency, NHS Highland will do so. You may wish to review the guidance from the Information Commissioner around Data sharing in an urgent situation or in an emergency.

There are some common situations where data is shared routinely, and we wanted to make you aware of those. We share data:

6a. with other parts of NHS Scotland

Within the NHS in Scotland, data is shared between Health Boards and organisations including the Scottish Ambulance Service, Public Health Scotland (PHS), NHS 24, and between Health Boards, GPs, community optometrists, community dentists and pharmacists for the purposes of your health or social care, the management of the health and social care system and when responding to public health issues. The Intra NHS Scotland Information Sharing Accord and the Joint Data Controller and Information Sharing Agreement between Health Boards and GP practices are examples of agreements used for this sort of data sharing.

Sharing across the NHS in Scotland includes working at national and regional level as well as in direct partnership with other Boards or NHS organisations. The North of Scotland Region comprises NHS Highland, NHS Grampian, NHS Orkney, NHS Shetland, NHS Tayside and NHS Western Isles.

6b. with local authorities

We work with our local authority partners for the purposes of health and social care integration further to the integrated approach to health and social care under the Public Bodies (Joint Working) (Scotland) Act 2014. We have signed an Information Sharing Agreement for integrated functions with each of the two local authorities in with in the NHS Highland area. This involves working very closely as partners and means that appropriate health and social care information is shared between NHS Highland and the Highland and Argyll and Bute Councils for the purposes of your care. The goal is to facilitate an integrated, multi-disciplinary, model for health and social care, centred on you.

We also collaborate on joint planning of the health and social care system in areas such as improving discharge planning or understanding service capacity pressures. This involves the use of anonymous statistical data about our patients and service users and their healthcare conditions and needs, or the state of the health and social care system.

6c. with other agencies

There are key statutory purposes for which we share data routinely between relevant partners and agencies such as Police Scotland, Scottish Fire and Rescue, local authorities and relevant Scottish and UK government agencies. They include child or adult public protection matters, emergency planning and response (including planning for and responding to major incidents), the prevention and detection of crime and responding to public or environmental health issues.

Statistical data, which may be drawn from an analysis of your health data but is unlikely to identify you, is shared with Scottish and UK Governments for the purposes of statutory reporting and national planning.

We share information with national agencies such as the Driver and Vehicle Licensing Agency, Department for Work and Pensions, the Medicines and Healthcare products Regulatory Agency, or NHS England as part of UK wide initiatives where it is relevant for your health or social care, public safety or for important purposes of public health or medicines or device safety.

6d. with regulators

If a professional or conduct matter is raised by one of the relevant professional registration bodies, such as the General Medical Council or the Nursing and Midwifery Council, that can lead to the professional body requesting access to your health records under their statutory powers. The focus of these requests is the professional person or matter being investigated rather than you, but your records may be essential to the regulator understanding the issue they are examining. In such cases, NHS Highland will work with the applicable professional body to help make sure that any of your data passed to them is appropriate and will be managed securely.

We are audited regularly by external regulators who have a statutory duty to make sure that we are performing appropriately. That can include the regulator reviewing patient information and records to satisfy itself that appropriate standards are being met. Healthcare Improvement Scotland, the Care Inspectorate, Audit Scotland and the Health and Safety Executive are all examples of regulators who oversee our work.

6e. with researchers

Approved medical research also takes place using healthcare data. Where this involves several healthcare providers it is normally considered via the Public Benefit and Privacy Panel and/or relevant ethics committees (such as university ethics committees when we work with clinical academic colleagues).

Approval for participation in national or local research is given by the NHS Highland’s Caldicott Guardian, who is a senior clinician. In NHS Highland the Caldicott Guardian is the Medical Director, who also has a Deputy Caldicott Guardian supporting them.

Research can include the provision of data, including identifiable data, to national registries for long-term analysis of trends in particular conditions for the benefit of everyone.

Research in health care also comprises the aggregation (bringing together) of data from different parts of the health and social care system. The outputs of research are always anonymous, are not used to make decisions about and safeguards will be put in place to help ensure the use of your data will never be harmful to you.

Where data is processed for medical research purposes, the lawful bases for doing so are normally that it comprises a task in the public interest and under the official authority of NHS Highland and research purposes subject to the safeguards in Article 89(1) of UK General Data Protection Regulations.

7. Transferring personal information abroad

NHS Highland does not transfer personal data outside of the UK routinely. When information is transferred outside the UK, the Board ensures that appropriate safeguards are in place per the terms of data protection legislation.

8. Retention periods of the information we hold

NHS Highland, like all Scottish Health Boards, is subject to the Scottish Government Records Management: HEALTH AND SOCIAL CARE CODE OF PRACTICE (SCOTLAND) 2020. The Code of Practice sets out minimum retention periods for information, including personal information, held in different types of records including personal health records and administrative records. NHS Highland aligns its activity with that Code of Practice.

9. How we protect personal information

We take care to ensure your personal information is only accessible to authorised people. Our staff have a legal and contractual duty to keep personal health information secure, and confidential. Our clinical staff are also subject to professional obligations via their registration body (General Medical Council; Nursing and Midwifery Council; Health and Care Professions Council; General Dental Council; General Pharmaceutical Council; General Optical Council etc). The following security measures are in place to protect personal information:

  • All staff undertake mandatory training in Data Protection and IT Security.
  • Information Security policies and procedures are in place and checked regularly against the requirements of the Network and Information Systems Regulations 2018.
  • We have access controls for our systems and can audit activity.

10. Your rights - including how to request your personal data and how to contact our Data Protection Officer

This section contains a description of your data protection rights within NHS Highland.

10a. The right to be informed

NHS Highland must explain how we use your personal information. We use a number of ways to communicate how personal information is used, including:

  • this Data Protection Notice and additional privacy notices provided to you directly in respect of certain activities or processes
  • information leaflets
  • discussions with staff providing your care

10b. The right of access

You have the right to access your own personal information. This right includes making you aware of what information we hold along with the opportunity to satisfy you that we are using your information fairly and lawfully.

You have the right to obtain:

  • confirmation that your personal information is being held or used by us
  • access to your personal information
  • additional information about how we use your personal information

Although we must provide this information free of charge, if your request is considered unfounded or excessive, or if you request the same information more than once, we may charge a reasonable fee.

In certain circumstances you may be entitled to seek information about others, known as third party data, however you must provide proof that:

  • the third party has provided written consent that you can act on their behalf (please note we may seek confirmation of consent from that third party)
  • the third party is unable to consent, and you have a legal guardianship over the affairs of that third party
  • you have parental entitlement over the third party (please note that for children over the age of 12 we may seek their opinion about the release of their information)

You can make a request for access to your information online through a secure portal. Prior to processing any request NHS Highland is required to be satisfied as to the identity of the requestor. As such during the application process you are asked to attach two forms of identification to include proof of signature, such as a passport or driving licence and proof of address such as a utility or council tax bill. You can upload identity documents and proof of entitlement to act for a third party online through our portal.

Important: Make a request for personal information

You can make a request for access to personal information held by NHS Highland through the NHS Highland Access to Information Portal:

MAKE A REQUEST

Once we have details of your request and you have provided us with enough information for us to locate your personal information, we will respond to your request without delay, within one calendar month (30 days). However, if your request is complex, we may take longer, by up to two months, to respond. If this is the case, we will tell you and explain the reason for the delay.

Once the information requested has been collected it will be returned to you electronically through the secure portal.

Alternatively, you can submit a request in writing to:

Patients

Governance and Quality Team
Access Admin Section
Central Records Department
Raigmore Hospital
Old Perth Road
Inverness
IV2 3UJ

Staff

10c. The right to rectification

If the personal information we hold about you is inaccurate or incomplete, you have the right to have this corrected.

If it is agreed that your personal information is inaccurate or incomplete, we will aim to amend your records accordingly, normally within one month, or within two months where the request is complex. However, we will contact you as quickly as possible to explain this further if the need to extend our timescales applies to your request. Unless there is a risk to patient safety, we can restrict access to your records to ensure that the inaccurate or incomplete information is not used until amended.

If for any reason we have shared your information with anyone else, perhaps during a referral to another service for example, we will notify them of the changes required so that we can ensure their records are accurate.

If, having considered your request, NHS Highland does not agree that your data is inaccurate, we may add a comment to your record stating your concerns about the information. If this is case, we will contact you within one month to explain our reasons for this.

10d. The right to object

When NHS Highland processes your personal information for the purpose of the performance of a task carried out in the public interest or in the exercise of official authority you have the right to object to the processing and also seek that further processing of your personal information is restricted. We are happy to consider any such requests, but please note that where NHS Highland can demonstrate compelling legitimate grounds for processing your personal information, for example in respect of patient safety, clinical recordkeeping or in support of legal claims, it is unlikely that we will be able to restrict the processing of your data.

10e. Rights in relation to automated decision-making and profiling

NHS Highland does not, at present, make any decision based solely on automated processing or profiling.

10f. Other rights

There are other rights under data protection legislation, however these rights only apply in certain circumstances, many of which are not applicable in respect of the processing data for the purposes of the provision of healthcare. For further information on these rights please see ico.org.uk/for-the-public. If you have any questions, please do let us know.

10g. The right to complain

We employ a Data Protection Officer to check that we handle personal information in a way that meets data protection law. If you are unhappy with the way in which we use your personal information or any decision we have made in respect of your data rights, please tell our Data Protection Officer using the contact details below.

Data Protection Officer
NHS Highland
Assynt House
Beechwood Park
Inverness
IV2 3BW

Please note: emails from your private email address may not be secure.

You may also wish to contact the Information Commissioner’s Office or seek to enforce your rights via judicial remedy.

11. Translation service for accessibility

If you would like a copy of this notice in another format or language, please contact NHS Highland who will take all reasonable steps to support your request.

Last updated: 8 March 2024

Next review date: 10 May 2024